Gwilherm prefers to redirect money being raised for him to help tsunami victims
Gwilherm Coste from Lorgues is the only person in France with Stuve-Wiedemann syndrome characterised by short stature, bowing of the long bones and permanently flexed fingers. It can lead to life-threatening complications such as respiratory distress. Speaking on France 3 last night, Gwilhern explained that he watches a lot of TV from his bed and had been so touched by the images of the tsunami disaster that he wanted to do something to help. The singer Claude Barzotti is due to give five concerts in January to raise money to send Gwilherm to America to see specialists in the syndrome and possibly to have a corrective operation. The youngster has asked that some of the money raised be redirected to the International Red Cross fund for Asia. One of the concerts is at Hyères on January 27.